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E-Rare Symposium
Fostering collaboration in rare diseases research
giovedì 30 ottobre 2014, ore 9:30
Casa dell’Aviatore
viale dell’Università, 20
00185 Roma
Session 1: Fostering transnational collaboration for rare diseases research funding

Chairs:
Ralph SCHUSTER, DLR, Germany
Domenica TARUSCIO, ISS, Italy

Speakers:
Daria JULKOWSKA, INSERM/ANR, France
Domenica TARUSCIO, ISS, Italy
Irene NORSTEDT, European Commission, Belgium
Paul LASKO, IRDiRC/CIHR, Canada

Session 2: Success stories

Chairs:
Milan MACEK, Charles University, Czech Republic
Filippo BELARDELLI, Italy

Speakers:
Arnaud GOOLAERTS, FNRS, Belgium
Franz SCHAEFER, Heidelberg University Hospital, Germany
Bernd WOLLNIK, University of Cologne, Germany
Alessandra BOLINO, Fondazione Centro San Raffaele de Monte Tabor, Italy
Mara DIERSSEN, Center for Genomic Regulation Genes and Diseases Program, Spain
Daniel SCHERMAN, CNRS, France

Session 3: Partners for collaboration

Chairs:
Sonja VAN WEELY, ZonMw, Netherlands and Hugh Dawkins, Office of Population Health Genomics, Australia

Speakers:
Victoria HEDLEY, University of Newcastle, UK
Segundo MARIZ, European Medicines Agency, UK
Carlo INCERTI, Genzyme, Italy
Yann LE CAM, Eurordis, France
Olivier MENZEL, Blackswan Foundation, Switzerland
Daria JULKOWSKA, INSERM/ANR, France


The participation in the Symposium is free of charge. However the number of places being limited we encourage future participants to register here as soon as possible.


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