giovedì 29 settembre 2016 - venerdì, 30 settembre 2016
Thursday, 29 September 20168:30
Participants registration
9:00
Welcome address
Domenica TARUSCIO, Director, National Centre for Rare Diseases Istituto Superiore di Sanità, Rome, Italy and RD-Connect WP2 Leader: “Databases and patient registries”
9:15
Introduction of the workshop
Claudio CARTA, National Centre for Rare Diseases, Istituto Superiore di Sanità, Rome, Italy
9:30
Semantic Web, Linked Data and Ontologies for Beginners
Marco ROOS, BioSemantics group, Human Genetics Department, Leiden University Medical Centre, Leiden, Netherlands
10:45
Coffee break
11:45
Use Case Introductions
Chairpersons:
Claudio CARTA and
Marco ROOS13:00
Lunch
13:30
Workgroup/task/use case division
Claudio CARTA and
Marco ROOS14:00
Working session 1: Explanation of general SOP and tools for making data linkable at the source
Marco ROOS and IT-Trainers
15:45
Break
16:15
Working session 2: attendees try to make their data linkable for CRQs following the general SOP together with data linkage experts
IT-Trainers
17:00
First impressions / progress report
Chairpersons:
Claudio CARTA,
Marco ROOS and
Domenica TARUSCIO17:30
End of the day
Friday, 30 September 20169:00
Answer questions from day 1
Chairpersons:
Marco ROOS and IT-Trainers
9:30
Working session 3: continuation from day 1
IT-Trainers
10:45
Coffee break
11:15
Working session 4: prepare demonstration of the results of the working sessions
IT-Trainers
13:00
Lunch
13:30
Use case presentations
Attendees and IT-Trainers
14:15
Evaluation of general SOP
Chairpersons:
Claudio CARTA,
Marco ROOS15:15
What went well / Things to take a look at
Chairpersons:
Claudio CARTA,
Marco ROOS16:15
Remarks and Conclusion
Claudio CARTA,
Marco ROOS and
Domenica TARUSCIO17:00
End of the workshop
